Friday, October 18, 2013

Heartbreak, House Move, Hernia, Holter Monitor and Halloween...

I like words, being that my oldest child is Hailey and my favorite holiday is coming up.  But heartbreak is not a favorite word of mine.  Especially when it's linked to my favorite H girl.  

Ahh, the perils of being seventeen.  She will live, we all have, but it doesn't make it any easier. We knew the day would come, and will also probably come again in her lifetime. I'm just glad she was able to come home and talk to Brian and I about it. And when she cried in my arms like she did the time she was three and slammed her finger in the door of her toy box, I wished a bright bandaid would make it all better.  But she is a beautiful, smart, kind girl and she will survive (cue Gloria Gaynor music here). And we've got ACTs, SATs and college visits on the horizon right now to keep her mind busy.  Doing our first college visit in December-KSU here we come!  Speaking of college, she asked Ethan today if he was going away to college with her.  I can't even fathom that day.

Our new house is all done, with a close date of next Thursday. So all of you great friends who have nothing to do next Thursday or Friday.....we have plenty of boxes to move. The big stuff is all being taken care of by the movers-so just the easy stuff. Oh, and pizza and beer on us!!  My older kids are out of school next Friday too!  How convenient!  
We have grass!



And stair carpet!


And I love the painted vault in our master bedroom!



Our builder is using our house for the photos on his new virtual tour!

And how appropriate is it that I get to put my new house key on my new keychain in October??


That's right-it's October. It's breast cancer awareness month and I'm a survivor because of the early detection of a mammogram!  Go get the girls squeezed, NOW!  
My next cancer center check up is the first week of November and all digits crossed for continued good news. 


Speaking of follow-ups, Parker saw the Ortho surgeon, and his clavicle is healing nicely. He was able to stop wearing his sling, start running in gym and conditioning for football, but no full contact yet. Another appointment Nov 8th will tell us when he can start lifting weights again!  But, we had to get a CT scan of his abdomen and the results have us going to a general surgeon next week to see whether or not he has a hernia that needs surgery.  Does it ever end?!?!
Good news-we got into one of the surgeons at Mercy I know and really like-Dr St. Peter. 
I guess we will know next week how our Thanksgiving is going to be spent. 
Tonight Parker had his fall choir concert, and it was so awesome!  They sang some wonderful acapella numbers in Latin and German, a little Village People's 'YMCA', some Queen's 'Bohemian Rhapsody', and the composer of the high school alma mater was even present to hear our kids sing it!  I loved choir in high school-anyone remember Soel Nylvester at NHS?  And sweet Mrs Roberson at SHS?  

Parker with my wonderful Dad and his big sis at the concert. Ethan was refusing to be in the picture on the grounds he was simply being a jackhole and his square mouth face would have ruined this pic...



I also got a call from Dr Kaine today about the bald kid's recent holter monitor results. And as Boston suspected, he is throwing some PVCs. Not too many, and mostly singles with a few couplets in there. No bradycardia though, and really, really normal heart rate the entire time!  Woo-hoo!  Dr Kaine is not concerned about the PVCs right now to do any pharmaceutical intervention, just feels we should do a holter monitor at least once a year from now on. In layman's terms-his heart is still doing some confused beat skipping, but not enough to worry about. 
Ethan's PCA, Denise, returned today to help us out on his two days off school, and he loved seeing her.   She is such a huge help to me too. Today she filmed him doing a new party trick....when we glove his right hand to keep it out of his mouth, he figured out how to remove the glove with his left hand.....hmmmm, Ethan.....Ms Mary is going to capitalize on this at school and I'm guessing some purposeful use of the left hand is what you will be working on next week!  We got your number bald kid!!  
We also made a trip to CMH North for the free flu shot for Ethan and Hailey-and I was dreading even going in there. And of course, I was honest on the 4 question form and checked the Yes box asking if Ethan has an egg allergy, and we got turned down. Even after I told them he's never ingested egg, it came up on an allergy panel, and he's had the flu shot every year since the allergy showed up and has had no problems. And it's always been at a Mercy facility!!  I even told them who to call in Allergy and verify he's had the flu shot, or to call his Ped's nurse at the PCC. But, noooo, we were referred back to our pediatrician. Which really makes absolutely no sense to me. If he was going to have a reaction to a vaccine, wouldn't it be more prudent to be in an Urgent Care than in a Pediatrician's office?  Especially considering the peds office is not on the CMH main campus anymore.  Wouldn't they be more prepared for an allergic reaction than the place who couldn't even find a sat probe to check his O2 sat last time we were there, thank goodness we brought our own.....ahem. I resign. No more CMH North. Though I do need to start his Vital Stim feeding therapy back up, and the fabulous OT Ms Amy is the only one who does it.  At CMH North. What if he aspirates or chokes?  I guess if that happens, I will be calling KCFD to take him to the ER downtown??  Just truly frustrated knowing that sick season is soon upon us, and I can't use the facility 1.2 miles from my house. 

Onto to a happier subject...my favorite holiday, Halloween is soon upon us and I have yet to figure out the bald kid's costume.  I need to get on that tomorrow since we have my sister's Halloween party to attend tomorrow night!  But I did come across another creepy hand in the hospital gift shop last weekend-for half price even!!


And even with the move coming up, I did do some Halloween decorating around the house-though not nearly as elaborate as years past. 







And I'm almost done with my googly eye picture frame-maybe this weekend.....



Next post should be coming from the new house!!!









Thursday, October 3, 2013

Closer to closing!

It's October and officially Fall, but hasn't really felt like it this week. 
We've had the AC off, then on, off and now back on. I will be so glad when we are out of this hot, stuffy, energy inefficient house. Especially since we had to pull our make-shift, looks like a white-trash- meth-cooking house portable AC unit from our bedroom while the house is showing. 



Trashy?  Yes. 
Kept me cool?  Oh, hell yes. 
And I will take comfort over fashionable any day. 
Except while trying to sell the house-someone else's house no less. 

Because, speaking of moving....
We will be closing on the new house in 2-3 weeks. 

We went from this:

 


To this:



Pretty darn quick.   

It's on the downhill slide now. 
And being in there today dropping off mirrors we already own to be hung in the bathrooms,  it was relatively comfortable upstairs with just the windows and back door open. And the downstairs was even cool. 
Ps- the air conditioner is NOT intstalled yet!  

This is a panoramic shot taken from me standing by the back of the house. 




This is a panoramic shot taken from me standing by where the stairs are in the above picture. 





This is the master bathroom-starting from left; tub, shower, closet(which walks tnru to laundry room!), toilet room, sink. 




 
Walk in master shower







Master bedroom ceiling.  We scored an accent wall to the left; Sherwin Williams Liberty Pewter, and the painted vaulted ceiling at no extra charge!!





Panoramic view taken from standing in front of the fireplace. You can't tell very well here, but we also scored an accent wall-Liberty Pewter-on the back of the house-left side of pic by back door slider. 





This is my pantry.  I'm in love. 







And did I mention the fabulous fireplace?




These are my hardwoods. 




Downstairs bar:






This is a close-up of the accent tile on the bar backsplash:






This is Ethan's bedroom-the windows are the ones you see from the front elevation of the house. 
I love his raised barn-like ceiling room!





And outside Ethan's door is a small closet and bathroom on the right, my wall alcove-with a plug in-also at no charge-straight ahead, and the entry hall to the left. 




This is Ethan's / the guest bathroom.  Love, love, love the awesome tile work this crew did!  




Finish plumbing, tile and carpet left yet to go in this week and appliances arriving Friday!!!


Once those are in I will post some pics of them and the downstairs kids rooms, and bar area and rec room. 

As I bump, bump, bump down our current stairs with Ethan on my lap, I get more and more excited for this house. This build job has been seamless, and efficient and we are getting everything we need in a brand new house for less than what we are paying in rent right now!  

Fall party soon!!!


Parker gets to take his sling off a little bit this week, and to be off for good in one week.   He does have to go back for another picture in 5 weeks to check healing. He may be able to start running after that, but still no lifting for another 5-6 weeks.  He's doing well, had his sling off all day today and only needed a Ibuprofen 600 for bed!  But no surgery so far!  
Oh, and his grades are all still a's and b's. Woo-hoo P!!
We are sosooooo proud of you!!  Keep it up amazing kid!  We love Ya lots!!!

Time to get out the creepy stuff.......






Helping my sister sister do a killer job on decorating for her Halloween party!  I can't wait!!!


It's fall y'all, so enjoy the cooler weather, and warmer drinks. 
We will have a housewarming at some point end of October/first of November and 
you all are welcome!  

Thank you for your continued love and support. 

A flashback to Boston;

Ethan's sleeping arrangement-and he must have been 
Tired of hearing us chat, and maybe a little cold..?!?!




But we did find a daddy look-a-like in the hospital:


Oh, wait, this was actually Daddy;


Sleeping in the cath lab waiting room. 




Ironic it was Stitch on Ethan's door-he loves Stitch!

And I loved the Handling Precautions sign describing what to expect of our little pretzel guy and how to handle and pick him up.  
A small thing I know, but really made Brian and I comfortable that those coming through the door knew what to expect-well, somewhat!




And another thank you-to Nicky's pizza in Liberty. He opened his doors and gave back his servers tips and 10% of his profit that night before we left.  It was a nice chunk of change that definitely kept us eating very well in Boston. But most of all, meeting some of the most kind folks that came in to share with us.   One specific man; Kerry, a bomber pilot brought Ethan a bunch of his bomber patches that he made up to share with guys he flies with and told us there is a whole bomber community out there shooting for the stars with wishes of a successful trip to Boston  for our boy. Such a nice young military man. 
These patches are going in Ethan's scrapbook, and since we have one or two left over, I'm going to send them to Ross Brown in Boston. A sweet, handicapped boy we met while staying at the Yawkey house just having had one surgery on his legs in July, waiting for it to heal so he could have the other leg done. Ross and his beautiful Momma Karen are from Texas and not prepared for a Boston winter. So I am gathering up some of our good, local, winter fare and a sweatshirt or two to send to him, along with the bomber patches. He needs to know those men are out there rooting for him too. 
So are we Ross, so are we!  




I think these and a KCPD jacket will bring a huge smile to Ross' face!  
Not to mention some great KC stuff-a chiefs sweatshirt, Royals hat, and of course some Zum, BBQ sauce, salsa and chips!  


Cheers with our stout, light and blueberry beer from Boston Beer Works!