It’s been a whirlwind around here for us, and even though summer is coming to an end (I’m personally hoping for an Indian summer before a lengthy fall) we still have LOTS going on
Did I mention if we aren’t running around with our hair on fire life doesn’t feel ‘normal’ to us!?!?
Ethan had his foot surgery in June. He did awesome and came home with casts on both lower legs. He didn’t seem to be bothered by them at all and was holding his legs up in the air just like normal in no time at all. Dr Schwend straightened his right third curly toe by taking out some joint cartilage and putting a pin in it. The cast was on that leg to protect the pin and let the toe heal. The left foot was far more extensive. He had the same pin/joint cartilage procedure done to his third toe on that foot, but he also had a calcaneal osteotomy, Brevis tendon lengthening and his Achilles tendon moved to the front of his foot.
Here’s some pics- cover your eyes if you’re squeamish at all….
Ready to go home with Royals blue casts!
First cast off for good, left foot x-rayed and checked and we went for red for Chiefs (and the Cardinals)
Finally got both casts off!
Three screws in there!
And got my Chiefs orthotics!
Back and forth to KC for these appointments meant a lot of traveling this summer, but he did well.
He’s seen a new Pediatrician here as well as and Endocrinologist and Ophthalmologist. More on those visits in my next blog post-it will take up a lot cause there’s lots of news.
Ethan also got the first of his 2-likely 3-Covid vaccine shots this weekend. And so far he’s done awesome! I’m not posting this to start a debate or argument. I respect everyone’s right to choose what works best for you and your family, and this is what works for ours. We waited so long-all the rest of us had ours done by May-because to be perfectly honest I was scared to death of it for him. Especially after the reports of males ending up with myocarditis as a result of it. He could not afford for that to happen to him. His heart may not tolerate it and we sure don’t want to do anything to jeopardize that Melody valve we worked so hard and traveled so far to get! And his cardiologist deferred to his Immunologist to make that decision. We had an appointment with her this week and she put me more at ease and gave me some info to make a good informed choice. Especially with him going back to in-person school in two weeks AND being immunocompromised AND having a congenital heart defect AND just being Ethan…..
We are going to draw his antibodies after he’s fully vaccinated to see if he mounted a response and if not, we’ll do a third booster shot. We may likely do the third one regardless.
He was a trooper with his shot and got a squishy ball and lunch at Soulard Gyro as a treat. Ok the gyros were a treat for me and Brian!
He didn’t even cry, and (knock on wood) has had no fever or any side effect so far. His shot was Saturday around noon! I also feel good about him getting it because we are headed to Florida next week to go to Universal Studios for the week!!
Some protection is better than none.
Baseball season has kept Brian busy around here. Though I’m pretty sure there’s not much chance of the Cards having any post-season play so I’ll get my husband back soon I hope. We did make it to a couple of games. The latest was when the Royals were here in STL and we stole the sweep from them!
It was not a pretty game by any means, and we had a rain delay in the top of the 9th that we left during so we didn’t get caught in the torrential downpour, but it was a ROYALS WIN!
Let’s not mention the poor showing this weekend when the Cards were in KC….
I’m headed to KC tomorrow for my pre-op appointment with my Plastic Surgeon Dr Butterworth. As soon as we get back from vacation I’m headed to KC for surgery on September 1st. This will be the lymphovenous bypass and lymph node transfer I blogged about in a previous post. I’ll post more this week if I find out anything new.
Hailey is doing well in PT school-finishing up her first full year with finals this week and then flying here to STL to fly to Orlando with the family. We are so proud of her and she got extremely high praise from one of her Professors on her last Practical. Said she did everything perfectly and spoke to the patient like she had done this all her life. Well…..she kind of has, only her main patient never spoke back-just demanded Minion movies and King Julien.
Parker has been working as Security Surveillance at Argosy Casino and really likes it. He’s got something in the works for his future career path and we are thrilled to see how it turns out. More on that later, I don’t want to spoil it.
T-6.5 days to vacation and I cannot wait. Other than the Sago family Reunion in Alabama in July-we haven’t gone anywhere else this summer and obviously no where last summer so it is much deserved and needed! I will share lots of pics-we are going with Brian’s brother Kellen and his family and this is bound to be an adventure.
Much love, hugs and prayers.
Be safe and be kind
-k
