Home Sweet Home-tweet Jesus!

Carepages won't let me post the update for some reason-so it's on here! 

We will all be sleeping comfortably in our own beds tonight, no more cage crib for Ethan, recliner chair for Brian, or couch bed for me!! 

Got home late this afternoon, after much discussion of taking Ethan to the cath lab to look at his pulmonary vessels and valve.  After the Anesthesiologist put his stethoscope on E's chest and listened for about 2 seconds he put the kabash on taking him to the cath lab!  Ethan has to go under anesthesia for a cath, and only a handful of anesthesiologists at Mercy do the cardiac kids and only when they are in tip-top shape and it's not an emergency.  The team was thinking they might keep him through the rest of this week and get him in the cath lab before letting us go home.  The problem is that since he has been on Lasix for the last week, his lungs sound really wet-he is coughing to move stuff around, but Ethan is not strong enough to have a productive, clearing cough.  Hence-not safe to go under.  We are ok with that and happily took our little guy home.  He will sleep on oxygen for the next few nights-as we are starting to see some swelling in his feet and slight color change again.  We will watch him closely and we see Dr Kaine again in two weeks for an echo and ekg and overall assesment of how the home meds are working.   If needed, we can just put the van on auto-pilot, cause it sure knows its own way to the Mercy!  I'm half tempted not to unpack a darn thing.  Kinda like my theory of going to clinic-if I pack a bag, he doesn't get admitted, if I don't-well, you know that story well by now!!

This is short and sweet, cause everyone here but Brian and I are in bed, and we are headed there shortly.  I want to say Thank You to all our family and friends, our neighbors and the KCPD Care Team-you all helped make a very stressful situation much less so!  Most kids take a village to raise, this one a country-and you've all been a much appreciated part of that by helping out with meals, the other kids, coming to hang out with us at the hospital, phone calls and emails of support and of course lots of prayers! 

We love you all very much!

Good night, sleep tight, I know we will!!!