T-33 hours....

5 weeks ago we got a phone call with a date, and it felt like a lifetime away. Now we are looking at a little over a day before we start this journey which is full of hope and promise for our bald kid. And is absolutely terrifying for me.  I think I'm doing the 'fake it til you make it' look pretty easy. I'm actually kind of a hot mess! 

Tonight was a personal little Bon Voyage Party for E with some of the most special people in Ethan's life.  Some people who have known E since birth, and some who have only recently fallen under the spell of that silly grin and infectious laugh. Slobber and all. 

Thanks to all who joined us. You all hold a very special place in our hearts for loving our boy and standing beside us through this roller coaster ride we got on 9 years ago.  And thanks for keeping me from crying until the very end. (Kim!)

Thank you for the awesome gifts-the AUTHENTIC autographed Taylor Swift pic from E's teacher at Maple Valley-Ms Mary. 

The "Boston Strong" shirts-for me, my sis and E-and bib from my dear friend Jenn. 

The cute, and oh so soft neck pillow from my sweet friend Kim-I might be stealing it myself for the flight!

And the Isabel Bloom "Super Hero" hand sculpted and painted statue from G-Ma Teresa and Grandpa Chuck, straight from Davenport, Iowa. 

And for all the love, hugs, good wishes, and support our family and friends have provided us during this time. 

Thanks to a dear friend and neighbor, Michelle, Nicky's Pizza in Liberty is donating 10% of their sales tomorrow night (8/28) as a benefit for Ethan's travel expenses. All day, lunch and dinner, dine in and carry out. So, if cooking in the hot, humid weather isn't your thing tomorrow night-come join us at Nicky's Pizza at 9771 N Cedar, KCMO 64157.   Behind the Sonic and QT at 291 and I-35. Great pizza, good sandwiches, and the bald kid will make an appearance around 7pm. Momma's gotta work til 7:30-so Hailey and Parker will take him up there after P's football practice. 

Again, we couldn't have done this without the help and support from all of you. It truly takes a village to raise a child, and in the case of our bald guy-more like a small country. 

We are blessed and humbled to have you all as our countrymen!  

 

Time to be that Super Hero Ethan. Put on your cape and fly through this challenge like you have so many times before, and like we know you can.

 Fly little bald guy, fly.