He was working too hard to breathe on the high flow oxygen cannula. Even though his sats were staying in the high 90's, he wasn't comfortable.
So....back on bipap he went. And it was obvious how much more comfortable he is on the bipap because his heart rate immediately dropped to the low 40's once it was on.
And my little insomniac has only had 2 hours of sleep since Friday. Not for lack of trying. Or lack of medicating.
Something is wrong and something is hurting him. He whimpers and cries. And his crp-inflammatory marker-jumped significantly overnight. Now we are playing 'search and destroy' to find the culprit.
Chest X-ray, abdomen xray, blood cultures, urine culture, and pelvis, hip and knee films looking for an angry joint.
His chest X-ray is showing patchy infiltrates and still looks very wet.
They are giving him 3x his home dose of Lasix to get the fluid off. Fortunately his belly film does not show an obstruction, so they are starting some food back up at 10ml/hour. Really, really, slow. Which is really, really good.
He also has hyponatremia-or his sodium concentration is too low in his blood. This can cause all kinds of problems and they are working to correct those.
They also consulted with Allergy/Immunology and guess what? Momma's not so crazy after all. He will be getting an IVIG infusion of his immunoglobulin today AND his home subQ infusion tomorrow and another one next Saturday. Hmmmm...I will take an 'I told you so' on that one. Actually I don't care, I just don't want him any worse so let's get this done!
They are giving him a couple more hours on the bipap before they reconvene and consider other options. They are talking like Pulmonology is probably going to have to get involved at that point.
Pray for decreased work of breathing, and some sleep for our little guy. He's pretty miserable right now.
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