Miserable baby

Ethan was pretty miserable Wednesday, didn't want to be held or messed with. Just wanted to lay in his bed and listen to Taylor Swift on his iPod.   He threw a good number of temper tantrums complete with biting his oxygen mask and grabbing the tubing and pulling it off his face a few times. I think he was really pissed off that he couldn't squeeze all his fingers though the little hole on the side of the mask and shove them in his mouth!

Not that I blame him in the least bit. Let's see, what did we find out yesterday???

He is, wait, was, constipated.  Good ole molasses enema took care of that.

He's still on 5 liters of 30% oxygen by face mask.

His virus panel was positive for three viruses: parainfluenza virus, rhinovirus, and enterovirus.
Sounds like the bubonic plague, right?  Nope-would only be cold-like symptoms in most people.

He got  more Vancomycin and Rocephin, and thus lost his only IV.
So Vascular Access had to be called to get him a new IV
AND he got stuck once more in his hand and finally his cute little bald head for the BNP.

I might be kinda pissed off too.

Good news?  Echo unchanged from July. BNP normal-no failure. Thus the Cardiology service punted him to Silver Team. Which we are ok with!

Bad news?  Ethan is terribly ill from minor viruses, so they are concerned his immunoglobulin dose is not enough or not working.  Easy fix?  Increase dose right?  Unfortunately we can't because his liver function tests are borderline high and increasing that med is contraindicated in that case.  So back to the drawing board with Immunology has got to happen soon.
They are going to put him on an aggressive asthma action plan to try and stay ahead of the respiratory crap this winter.

In the meantime, they have got to try and wean him off oxygen to get him home, so it will clearly be a few days before he's home.

I will update later today when we know more!